I might have been misdiagnosed
I dealt with a lot of emotions yesterday. I visited a neuro (my primary neuro was on leave) to get my kesimpta refill when he pointed out a couple of things that would make him 2nd guess my MS diagnosis to begin with. Below are the pointers:
- My CSF last year was in the normal range (0.5) which isn’t the case for an MS patient
- My oligobands were 2 (criteria for positivity is 4 or more?)
- My brain lesions did not show up (disappeared) in my recent MRI (as per him MS lesions do not go away)
He asked me to seek a second opinion from a different neuro in a different hospital on this. Meanwhile he’ll set up a meeting with my primary neuro to discuss my case.
He believes it could have been a one time demyelination that happened because of a number of factors - getting covid, getting the covid vaccine are two he mentioned.
I feel horrible. While the possibility that I may not have MS is good news to me I feel sorry for myself that the whole of last year I have been taking kesimpta and don’t know what that does to a person who doesn’t have MS. Moreover, the past year has been me trying to convince myself that having this disease doesn’t mean the end of the world. I have had alot of falling out with people close to me because I pushed everyone away. I am going to get a second opinion but wanted to rant it here abit.
Edit - changed doctor to neuro to avoid any confusions.